5353 Balboa Blvd, Suite 104
Encino, CA 91316
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(818) 789-7181
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National Information Center for Children and Youth with Disabilities
is one of the best organized sites with information on education, parent support groups, legislation and more.
The National Organization for Rare Disorders
is a clearinghouse for information on rare diseases.
Rare Genetic Diseases in Children
A well organized site with links on financial, educational, and medical resources for children with genetic disease.
RxList
is an online pharmacy database.